We are extremely grateful that there are drugs available to kill myeloma cells, but when you experience odd side effects, it may be helpful to know which ones are caused by which drug.
It may not be you but the meds talking! Make sure you understand the side effects of each drug so you can better manage your own care. Discuss these side effects with your healthcare team because your medications can be adjusted if the side effects are not tolerable.
Dexamethasone Side Effects (as reported by myeloma patients)
High power and energy during drug use but big exhaustion/crash for 1-2 days post drug use
Sleeplessness / Insomnia – most patients have to take a sleep aid to get enough sleep at night
Overall Weight gain and weight gain in torso
Causes blood sugar regulation issues / increased sensitivity to sugar
Can cause diabetes over long periods of time
Cataracts
Irritability / short temper / anger / rage (some say “extreme rage”)
Increased appetite
Swollen legs, feet, wrists or ankles / fluid retention
Body temperature regulation becomes suppressed
Migranes
Body temperature spikes at night
Night sweats
Strange but memorable dreams!
Weakness and muscle loss
“Moon face” or swollen face
Painful menstrual cramps
Pain relief
Great house cleaning ability 🙂
Obsessive behavior about cleanliness and order
Fast speech
Accelerated thinking
Slight nausea and depression
Bone and muscle loss
Brittle hair
Facial hair
Hot flashes
Psychosis if give in large doses
Revlimid side effects (lenalidomide)
REVLIMID may cause serious birth defects or death of an unborn baby. Do not get pregnant while taking REVLIMID.
Low white blood cells (neutrophenia) and low platelets (thrombocytopenia)
Blood clots (risk is higher for patients also taking dexamethasone or smokers)
Higher incidence of heart attacks and stroke
Risk of new cancers (for those who receive REVLIMID and melphalan)
Liver problems
Allergic reactions or skin reactions
Tumor lysis syndrom: changes to blood chemistry, high potassium, phosphorus, uric acid, and low calcium. This may lead to changes in kidney function, heartbeat, seizures, and sometimes death
Diarrhea
Constipation
Itching, rash
Tiredness
Swelling of the limbs and skin
Nausea
Fever
Cough
Velcade side effects (bortezomib)
Fatigue
peripheral neuropathy (numbness or tingling in hands and feet)
Low blood pressure
Heart problems
Lung disorders or problems
Liver disease or problems
Posterior reversible encephalopathy syndrome (PRES)
Nausea, diarrhea, constipation and vomiting (GI problems)
Low levels of neutrophils and leukocytes (types of white blood cells)
Low levels of platelets
Tumor lysis syndrome
Low levels of red blood cells (anemia)
Painful, itchy rash usually located in an area on one side of the body (herpes zoster)
Fever
Decreased appetite (anorexia)
Ninlaro Side Effects (ixazomib)
Low platelet counts (thrombocytopenia)
Stomach and intestinal (gastrointestinal) problems. (Diarrhea, constipation, nausea, and vomiting)
Nerve problems. (Tingling, Numbness, Pain, A burning feeling in your feet or hands, Weakness in your arms or legs)
Swelling
Skin reactions
Liver problems
Back pain
Skin rash and pain (shingles) as a result of reactivation of the chicken pox virus (herpes zoster)
Lowered white blood cells called neutrophils (neutropenia) that may increase the risk of infection
Vision conditions including blurred vision, dry eye and pink eye (conjunctivitis)
Kyprolis Side Effects (carfilzomib)
Low red blood cell count
Tiredness (fatigue)
Low platelets
Nausea
Fever
Trouble breathing
Diarrhea
Headache
Cough
Swelling of the lower legs or hands
Infusion reactions
Empliciti Side Effects (elotuzumab)
Fatigue
Diarrhea
Fever
Constipation
Cough
Numbness, weakness, tingling, or burning pain in your arms or legs
Sore throat or runny nose
Upper respiratory tract infection
Decreased appetite
Pneumonia
Darzalex Side Effects (daratumumab)
Infusion reactions: shortness of breath or trouble breathing, dizziness or lightheadedness (hypotension), cough, wheezing, throat tightness, runny or stuffy nose, headache, itching, nausea, vomiting, chills, fever
Masking of your blood type. DARZALEX® can affect the results of blood tests to match your blood type. These changes can last for up to 6 months after your final dose of DARZALEX®. Your healthcare provider will do blood tests to match your blood type before you start treatment with DARZALEX®. Tell all of your healthcare providers that you are being treated with DARZALEX® before receiving blood transfusions.
Decreases in blood cell counts
Tiredness
Nausea
Diarrhea
Shortness of breath
Fever
Cough
Muscle spasms
Back pain
Cold-like symptoms (upper respiratory infection)
Nerve damage causing tingling, numbness or pain
Swollen hands, ankles or feet
Zometa (zoledronic acid)
Common side effects include:
Bone pain
Nausea
Feber
Fatigue
Anemia
Vomiting Constipation
Flu-like symptoms
Osteonecrosis of the jaw (uncommon)
https://myelomacrowd.org/myeloma-medications-and-side-effects/
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